Ailyn has been doing very well! We even see her cheeks getting a little fuller! She still is very sore around the belly. Surprisingly she does not mind the feeding tube when it's in. She crawls around while I follow behind her. Thank goodness she only needs a tube feeding 2 hours during the day. The night feedings are going ok. She is waking every hour which is very hard on me! Ailyn loves sleeping on her belly and can't right now, so she wakes in pain. Her reflux also bothers her some from the continuous feed. I'm sure it will just get better and better but I am waiting for that ALL night rest that the doctors told me I would get ;)
I took the kids away for a week to "get away". We all needed the break. We missed our Daddy, but he was able to come for the weekend. Pictures will come soon of our last minute vacation. Thank you Mom and Dad for making it possible, we had a very relaxing time. OX
