Ailyn had her 1 year check up today. 13 pounds 9 ounces and 25 1/2 inches. Poor Strawberry got 4 shots and blood drawn (CK-muscular). We talked about a feeding tube, and he understands we are not OK with the procedure. But, he stresses how well it will benefit her. He was extremely happy with her health and said she has surpassed the expectations of every doctor. For now we are not going with the feeding tube. The developmental pediatrician agreed with this and was happy with her weight gain.
We also went to the GI the other day. The GI was not thrilled with her weight but was OK with us not going through with the feeding tube right now. Instead we switched to Pediasure instead of formula. We have to try to get 36 ounces a day into her. Right now she can drink up to 32. The Pediasure is 30 calories. Her formula was 28 calories. She was VERY happy with the switch!! Camden even liked the taste. Her bottles now smell like a sugar cookie instead of gross formula. We are giving her the vanilla flavor because it has less sugar than the other flavors.
The developmental pediatrician appointment went well. Better than I expected actually. I was really worried that the doctor was not going to happy with her progress. She didn't expect her to be crawling and said she was close to the milestones she is behind in. She is around 6-7 months in gross motor (she is 9 months adjusted). This bothered me but she said considering where she came from, she is doing very well. We follow up in 3 months with her.
We ALSO had an eye appointment. The eye doctor was very pleased the MRI went so well. He wants to wait for two more eye measurements before he does the surgery. Her eyes are still getting worse. No surgery date as of now, but within 6 months she will have the surgery.
Ailyn's OT suggested we try a brushing technique.
The brushing technique is used to calm the sensory system. We rub a soft brush on the palms of her hands a few times a day. At this point we are trying anything to help her use her arms. BUT, in the past few days we have noticed her using her arms a little more!! She can do everything with her arms but put pressure or pull herself up. Camden has some sensory issues also so it would not surprise us if this is the answer.
I am ready for a break from doctor appointments! There is so much information and things to think about, having so many at once is very stressful to us.
How sweet were these pictures??? Ailyn and I were watching Daddy and Camden practice baseball. Camden would come over to us and give Ailyn kisses and make her laugh. I love watching them interact, it just melts my heart!
Ailyn had her 1 year check up today. 13 pounds 9 ounces and 25 1/2 inches. Poor Strawberry got 4 shots and blood drawn (CK-muscular). We talked about a feeding tube, and he understands we are not OK with the procedure. But, he stresses how well it will benefit her. He was extremely happy with her health and said she has surpassed the expectations of every doctor. For now we are not going with the feeding tube. The developmental pediatrician agreed with this and was happy with her weight gain. 
We also went to the GI the other day. The GI was not thrilled with her weight but was OK with us not going through with the feeding tube right now. Instead we switched to Pediasure instead of formula. We have to try to get 36 ounces a day into her. Right now she can drink up to 32. The Pediasure is 30 calories. Her formula was 28 calories. She was VERY happy with the switch!! Camden even liked the taste. Her bottles now smell like a sugar cookie instead of gross formula. We are giving her the vanilla flavor because it has less sugar than the other flavors.
The developmental pediatrician appointment went well. Better than I expected actually. I was really worried that the doctor was not going to happy with her progress. She didn't expect her to be crawling and said she was close to the milestones she is behind in. She is around 6-7 months in gross motor (she is 9 months adjusted). This bothered me but she said considering where she came from, she is doing very well. We follow up in 3 months with her.
We ALSO had an eye appointment. The eye doctor was very pleased the MRI went so well. He wants to wait for two more eye measurements before he does the surgery. Her eyes are still getting worse. No surgery date as of now, but within 6 months she will have the surgery.
Ailyn's OT suggested we try a brushing technique. The brushing technique is used to calm the sensory system. We rub a soft brush on the palms of her hands a few times a day. At this point we are trying anything to help her use her arms. BUT, in the past few days we have noticed her using her arms a little more!! She can do everything with her arms but put pressure or pull herself up. Camden has some sensory issues also so it would not surprise us if this is the answer.
I am ready for a break from doctor appointments! There is so much information and things to think about, having so many at once is very stressful to us.
How sweet were these pictures??? Ailyn and I were watching Daddy and Camden practice baseball. Camden would come over to us and give Ailyn kisses and make her laugh. I love watching them interact, it just melts my heart!
