Today started bright and early at 5:45am when the nurse came in to take A's blood pressure. She couldn't go back to sleep. Therapy started at 9am with PT
Little crazy but her PT picked out a Strawberry knee brace without knowing Ailyn's nickname 🍓
Walking is a huge challenge right now. Her hip is very sore and the pain radiates down to her ankle. She put very little pressure on her right leg. A few steps wears her out. But, she walked a good distance for her first day. Of course she gives her breaks but she kept on going. 
We got to play in the playroom until speech. 
Ailyn being Ailyn was very bossy and had the Child Life volunteers doing anything she wanted. One was feeding her baby while she played Go Fish. 
This is Ailyn 4 years ago with her speech teacher. Ailyn talked in complete sentences and showed off all her new words. 4 years ago she couldn't say two words together. 
Back to PT after lunch! A was so excited to ride this bike. I wasn't at this PT session. I enjoyed time outside alone! 
Ailyn is now well known around here for her love of bubbles (thank you Mrs. Williams for the new obsession) You say "bubbles" and she will do anything. 
Ailyn's very favorite person came to see her. She brought her favorite. French fries, hamburger and Coke" She bossed Auntie around and even had her nursing her baby doll. Thank you Auntie 🦄
Hot baths have been her favorite thing for her hip. She's in a lot of pain tonight from all the hard work. We just got done stretching and are waiting for Daddy to visit. They do have therapies on Saturday's but not so busy. Anyone local that wants to visit please do!
I will be updating her progress often so check back when you can! Thanks for all the support and love.
