At the end of November, Ailyn's aide left her school. This made us very sad. Kristen was so great with Ailyn. She just "got" Ailyn. And, Ailyn LOVES her. But, it wasn't that sad..... Kristen has been coming over to babysit for us!! We are so fortunate to have found Kristen. She's an amazing friend to our family already. The kids adore her.
Ailyn got bronchitis for the first time. It started as a rash all over her face. Then turned quickly into a bad cough. She missed a week of school. She handeled it pretty well without having to have any breathing treatments.
We said goodbye to our feeding tube supplies!!! Homecare picked up the monitor and the IV pole and we sent our extra supplies to an Instagram friend. Ailyn did regress with feeding since being so sick. She still drinks enough Pediasure to keep her weight up. Her Gtube site is still leaking and bleeding. She will have to get it surgically closed soon.
We picked the perfect tree out. Ailyn refused to wear her sock and shoe so she wasn't allowed in the photo.
I made super cute ornaments thanks to Pinterest.
Ailyn pettled a bike or the first time!!! AND, slept 12 hours after!
And, blew bubbles! Her school speech teacher told me she could and I got to see it for myself!
We had our 2nd annual reindeer food making party. It was a lot of fun.
this girls got some new attitude!
Santa was a huge hit! Ailyn loved him. Camden told him he wanted a "live dog" and Ailyn signed that she wanted a "baby".
We exchanged gifts with Yuba.
Ailyn has a wonderful new aide. She is very sweet and I can tell she really likes Ailyn. I think it's another great fit!
She can stop growing up now.....
Ailyn got fitted for new braces. Ailyn was going to have Botox on both ankles then be casted for 6 weeks but thank goodness that is being held off! We got a second opinion and the doctor thinks new braces will help her right now.
It was a busy month with therapies, appointments, school and Christmas "stuff". By Christmas Day I was done and needed a few pj days..... which we were able to have!!
Christmas Day was HUGE in our house this year!!! It's a post all on it's on for sure!
