Ailyn continues to bloom in school. She loves going to school. She even started to pay attention to the other children. A little boy watches over her in class, always making sure Ailyn is OK. That makes my heart melt.
Ailyn wears her braces to school everyday. No complaints. When we get home she asks to take them right off. She will sigh a huge sigh as she rubs her legs.
We had our second IEP meeting a few weeks ago. Her therapists are thrilled with her progress. They need to revise her goals already. I really like all her therapists. I think each one is a good fit for Ailyn.
We still go to the children's hospital 3x a week. Her favorite is PT with Yuba the dog. She asks for Yuba all the time. I think it's time Ailyn gets her own doggy!
The bad behaviors are back and worse than ever. Let's see...... in one day she threw a ceramic bowl all over, spilled 4 drinks (on purpose), scrathed, pinched, it all of us, poured cereal everywhere.... and much more. She laughs when she is caught. She cares less about time out.
In 3 1/2 years, I think Ailyn has slept through the night twice. She wakes up and can't go back to sleep...sometimes for hours. Night is her biggest time to get her calories in. I think her body is conditioned to want to eat all night. And, eat she does! She now will down sometimes 3 8 ounce bottles!
Feeding is going AMAZING! Having her tonsils out was the best ever! She eats every meal and a lot of it! Sometimes more than Camden....which isn't saying much. Last time we weighed her, she had gained 3 pounds since the tube came out!! She is about 28 1/2 pounds now!!!
Ailyn had a 4 hour video EEG last week. I woke her at 3am and kept her up until the test started at 10am. We were looking for any seizure activity. No results yet.
Doesn't she look so teeny in that big school?? She does so well with her walker. She will play anyone though. She will pretend she can't walk fast. I think she loves the praise she gets.
Since school started, Ailyn will sit longer for projects. She painted this pumpkin for a whole minute! And, last night colored a picture for 2 minutes! Now that is progress!!!
I'm loving my 2 1/2 hours ALONE! I do everything from lounging with my feet up watching TV to painting my nails. Oh yeah, clean and do wash too. It's amazing what 2 1/2 hours does to refuel you!
Camden is doing much better in school. He made a new friend and had a playdate over his house. I'm glad he's over that!
The kids both have bad colds right now. Ailyn stayed home yesterday but went today. Her whole class is coughing. It's really gross.
So there's some random thoughts.... not very organized. But, that's how life seems to be going right now. I just got a call that Camden isn't feelng well. Guess we will have another sick day.....FUN
